Luton Parent Carer Forum (PCF) update:
The Luton Parent Carer Forum has now closed and Julie Singleton, Parent Carer Participation Advisor for ‘Contact’ for the East of England and South East and associate consultants will be working with Luton to develop a new forum over the coming year.
Due to the circumstances we find ourselves in much of the development work such as meetings, talking to parents about what they would like from a Forum and getting involved with it will have to be online. This work will start this after the Easter break. The person will be liaising with key stakeholders too.
As an interim measure, if parents/ carers live in Luton and their children access services in nearby LA areas, depending on the Forum’s individual policy they may be able to join those Forums.
If parents or practitioners have any questions about what our plans are they can contact Julie: [email protected]
Some other useful links to information:
Parents needing individual help can look at our Advice pages here https://www.contact.org.uk/advice-and-support/
Here is the link to our parent participation pages here https://www.contact.org.uk/get-involved/parent-carer-participation/
For financial advice here are our pages https://www.contact.org.uk/advice-and-support/benefits-financial-help/
For things to do with the children while they are at home here is the link fun and inspiring ideas and resources to keep children entertained at home
Autism Bedfordshire’s services help break down the barriers to social participation for autistic people and their families by providing places where they can go and feel comfortable, accepted and not judged by society. With the encouragement and support of specialist trained staff they help autistic people build their confidence, self-esteem, and social skills through taking part in social activities and mixing with other people.
01234 350704 – 9am to 5pm, Mondays to Fridays (excluding bank holidays).
SWAN Support with Autism Network
Family Fund can provide essential grant support for families. Find out more about Family Fund on their website.
I CAN is the leading charity for children and young people’s speech, language and communication. I CAN has a range of free information about speech, language and communication skills on its Talking Point website and you can speak to one of I CAN’s speech and language specialists for free advice and guidance by calling 020 7843 2544.
The Challenging Behaviour Foundation (CBF) They provide free information about challenging behaviour and a wide range of related topics online; available online.
They can also signpost you to other specialist organisations and sources of information.
Call the family support service on: 0300 666 0126
The FSCC delivers a range of support and services to help children develop and progress by supporting them and their parents. The FSCC provides opportunities for young children and their families to access the right support locally at the right time and at the right level.
For more information visit www.flyingstartluton.com/
SWAN UK (syndromes without a name) is the only dedicated support network available for families of children and young adults with undiagnosed genetic conditions in the UK. SWAN UK run regular free events to bring families together and provide opportunities to make precious memories.
Contact support families with disabled children, they provide A free helpline where you can talk to one of their parent advisers about any concern or worry you may have about raising a disabled child – 0808 808 3555 – or you can email the team of parent advisers or get in touch with them via their Live Chat service, Facebook or Twitter.
Are a charity created with the sole aim of improving young peoples’ lives. They provide funding to children with disabilities, life-limiting illnesses and those who are in extreme poverty across the UK. Their grants can fund specialist equipment not available on the NHS, treatments such as a Speech & Language Therapy and Behavioural Therapy, and household essentials and food vouchers to those in extreme poverty. To apply visit http://www.theboparancharitabletrust.com/apply
Sense Specialist Services for Children and Young People is a dedicated team which offers charitable support to children who are deafblind/multi-sensory impaired.
Autism Parent Groups Information
The Autism Spectrum Team, part of the Special Educational Needs Service at Luton Council, run three Autism support groups across Luton.
FLAG – Families Living with Autism Group
SWAN – Support With Autism Network
DADS – Dads Autism Discuss Support (Specifically for Dads and male carers)
FLAG – [email protected]
SWAN – [email protected]
DADS- [email protected]
If you would like more information about the team and the Special Educational Needs Service please visit: https://directory.luton.gov.uk/kb5/luton/directory/localoffer.page
Kids in Action is a charity for special needs children with a strong focus on positively transforming young people’s lives. From their centre in Dunstable we run a variety of clubs, as well as daily, weekly and school holiday activities.
The Carers Central service is dedicated to helping unpaid carers living of working in Luton. They run an online support group on a Monday morning between 10.30 -12.00pm. For more information please contact Levi or Sally on
– WhatsApp: 07557 529613
– Phone: 0300 303 0201
– Facebook Messenger: @TheDisabilityResourceCentre
– Email: [email protected]
– Text us: 07557 529613
– Chat now: On their website just click the ‘chat to us’ box at the bottom of every page, open 9.00am to 5.00pm, Monday to Friday